A look at what issues can linger, from fatigue to anxiety.
Getty Images
The final day of treatment or the moment a scan shows no signs of disease are joyful major milestones for patients battling with cancer. But unfortunately, they rarely signify the end of cancer-related health issues. The emotional and physical impacts of cancer can continue for years afterward which may come as a surprise to both survivors and their loved ones. Hereâs a deeper look at what many survivors face, along with tips for coping with some of the hurdles.
When treatment wraps up, many survivors feel like they arenât actively fighting their cancer anymore, leaving them with the sense that their body is defenseless. That, combined with seeing their doctors far less often, can lead to big fears of recurrence, according to the American Cancer Society (ACS).
âI have a high chance of my cancer coming back in the first five years, and Iâm still at risk for it returning,â says Jim Scott, who was diagnosed with bladder cancer in 2015. Scott says he often worries about getting sick again and becoming a burden on his family.
With a body that doesnât feel like their own, many survivors feel particularly anxious.
For some patients, fears get especially high when they have upcoming scans, according to ACS. Sometimes doctors recommend performing periodic imaging tests to ensure the cancer hasnât returned. These tests bring a patientâs sickness to their top of mind, which can cause anxieties to bubble to the surface.
Survivors may also feel sadness because they donât recognize their bodies anymore after all they have been through. âMaybe they had a tumor that needed to be removed, or a lumpectomy on their breast, or are now sterile after having testicular cancer. Their bodies are just different,â says Karen Winkfield, MD, PhD, a radiation oncologist specializing in health equity and community engaged research. âAnd that can really impact self-esteem and be hard on mental health. With a body that doesnât feel like their own, many survivors feel particularly anxious, especially around romantic relationships,” Dr. Winkfield adds.
This was the case for Gina Costa, who was diagnosed with breast cancer in 2012 and underwent a double mastectomy. But support from her husband helped her come to view her scars as signs of lifeânot a defect. âThe fact that my husband accepted me both before and after reconstruction surgery really helped me sustain myself during that time,â she says. âHe let me know that he loved me for my inside, not my outside.â
Since there is often no visible sign of anything going on, others may assume survivors are âback to normal,â causing them to feel like they ought to be coping better than they are. The problem is, there is no going back to how things were pre-diagnosis. Many donât know what their post-treatment life is going to look like, and it can take a while to figure that out, according to the National Cancer Institute (NCI). And survivors may feel uncomfortable bringing up any of this with their friends or family members, causing them to feel isolated and depressed.
âI remember going back to work after my surgery, and people were crying when they saw me like I was going to die.â
âPeople arenât always open or transparent about how theyâre doing,â says Dr. Winkfield. Why isnât it talked about? âThere can be a lot of fears, myths, and misunderstandings around cancer and what causes it, which can stop people from talking about the disease, even within families,â says Dr. Winkfield. âFor example, some believe itâs an automatic death sentence, and others may consider it a curse for past sins.â
Some survivors may also notice tension in their personal relationships. They may end up feeling like their friends and family members are avoiding them because they donât know what to say. In some cases, people in their life may mistakenly feel support is no longer needed after treatment, which may cause survivors to feel abandoned. On the other hand, some may feel overwhelmed by loved ones who can be a bit smothering and overly helpful, according to the Mayo Clinic. Either side of the coin can lead to high levels of stress.
And then there are people who mean well but have unhelpful reactions to your cancer diagnosis. âI remember going back to work after my surgery, and people were crying when they saw me like I was going to die,â says Costa. âI felt my anxiety come up and had to take a step back and say those are their feelings, not my feelings.â
While theyâre necessary, many cancer treatments and surgeries can have lasting physical effects on the body. âThis is such a big deal that can impact so many things,â says Dr. Winkfield. âYou donât have to look sick for physical health issues to linger from your body having cancer, going through treatment, and recovering from toxicities related to the therapies.â
The most common physical issue facing survivors is fatigue. This is not the typical kind of tiredness felt after a few bad nights of sleep. Itâs more severe and has a more significant impact on quality of life. Survivors may also develop heart problems, swelling in arms and legs related to the removal of lymph nodes, and even the emergence of additional cancers throughout their body months or years after the end of treatment, according to The Cancer Atlas, a website focusing on the impact of cancer around the world, created in partnership with the American Cancer Society.
As pervasive as these issues are, there is a path forward for survivors.
There is also the physical difficulty of adjusting to a post-treatment body. For Scott, who had his bladder removed, that involved getting used to an entirely new way of going to the bathroom. âIt was quite a challenge to get used to my new bladderâit took about a year,â he says. âIn hindsight it went by quickly, but at the time it wasn’t so easy.â
As pervasive as these issues are, there is a path forward for survivors. Being prepared ahead of time and having the right tools in place to deal with any problems that arise can make all the difference.
Itâs normal for cancer survivors to face struggles, but these tips from the cancer community may help you get through the tougher days:
Keep doctor/patient communication open.
The more honest a survivor can be with their health care team, the better. âMake sure you feel comfortable enough with your doctor that you can talk about the side effects youâre feeling,â says Dr. Winkfield. If that isnât the case, finding a different provider may help.
Consider support groups.
While not for everyone, joining a cancer support group (most hospitals have them) can help survivors feel like they arenât so alone in their journey. âThere are things you can only talk about with other cancer survivors,â says Scott. âAnd you can be inspired, like by someone who started off worse than you and is doing okay now.â If the big group setting feels overwhelming, a one-on-one therapist may be a better option.
Ask for help.
Leaning on loved ones can free up a survivor to focus on treating their different health issues. âIâm used to doing everything for everyone else, but I couldnât be like that anymore after cancer,â says Costa. âIt was hard for me to accept that, but I wasnât going to heal if I was constantly taking care of other peopleâs needs.â
Keep the right friends close.
The support system for survivors is usually on the smaller side, which turns out to be a good thing. âIt took a long time until I could say out loud that I had cancer to someone beyond my immediate family,â says Costa. âDonât feel like you need to tell people your business until youâre ready. And when you do, only reach out to people who you trust and who have a healthy outlook on things.â This is not the time for survivors to spend emotional energy on relationships that arenât fulfilling, according to the Mayo Clinic.
Visit YourCancerStory.com to find educational information, inspirational stories, and support across all phases of the cancer journey.
This content is created and maintained by a third party, and imported onto this page to help users provide their email addresses. You may be able to find more information about this and similar content at p